The 22q11.2 Society
www.22qsociety.org


Promoting research, diagnosis, prognosis, and management of 22q11.2DS & related disorders

COVID-19 Info

A video message from the 22q11.2 Society

Disclaimer: The information on this webpage is brought to you by the 22q11.2 Society for educational purposes only. It is not intended to be taken as medical advice. If you have any concerns about COVID-19 or any aspects of your health, please check with your healthcare provider. Thank you.

Let's help reduce the spread of COVID-19

The COVID-19 pandemic is happening around the world. Let's reduce the spread:
  • Stay home (Why staying home helps)
  • Wash your hands often with soap and water for at least 20 seconds OR use alcohol-based hand sanitizers
  • Try not to touch your eyes, nose, and mouth
  • Cough and sneeze into your sleeves and not your hands
  • Stay at least 2 metres (6 feet, or 3 big steps) away from one another
  • Wear a cloth mask
Cartoon coronavirus

COVID-19 videos for individuals with immunodeficiencies

The Immune Deficiency Foundation has generated for important video presentations for the 22q11.2 Community concerning the COVID-19 ("coronavirus") situation. These videos are made by 22q11.2 Society Advisor, Chair of Allergy and Immunology at the Children's Hospital of Philadelphia, and Professor of Pediatrics at the Perelman School of Medicine of the University of Pennsylvania, Kathleen Sullivan, MD, PhD.

The IDF also offers recordings of its forums on its videos page.

To find out how individuals with immunodeficiencies have been doing when they contract COVID-19, please see the April 10 video (7 min 55 sec) and the May 8 video (9 min 11 sec)

Date of videoTopics
March 3, 2020COVID-19 update
Preventing infection
Logistical plans
What to do if you get sick
March 10, 2020Update and nomenclature
Testing
Life long immunity
Risks to patients with immunodeficiencies
Are immunoglobulins protective
How not to touch your face
March 18, 2020Updates on treatment
How does the immune system respond to a virus?
Specific concerns for different immunodeficiencies
Vaccine development
Links
April 10, 2020Course of typical infection
Therapies
How well people with immunodeficiencies do when they have COVID-19
May 8, 2020Treatment
Statistics
Immune modulators
How well people with immunodeficiencies do when they have COVID-19
Vaccine development
Are immunoglobulins protective?
May 29, 2020PCR vs. Antibody testing
Immunoglobulin replacement
Going back to school or work
Multisystem inflammatory syndrome in children
June 18, 2020Are all antibodies good?
Why can't we just make a vaccine - any vaccine, and get going?
Are antibodies after a vaccine the same as after natural infection
July 17, 2020How do vaccines work?
Types of vaccines
Vaccine development time line
Passive immunity


Invitation to participate in studies

Immunodeficiency and COVID-19

Please advise your patients to contact the Immunodeficiency Foundation (IDF) if they have an immunodeficiency and catch COVID-19. This lets researchers gather data to understand the risks of COVID-19 in people with immunodeficiencies.

Survey for families affected by chromosome differences

G2MH, an international group of scientists and healthcare providers, many of whom are members of the 22q11.2 Society and supported by the US National Institutes of Health (NIH), is interested in learning about why families and persons affected by chromosome differences may or may not participate in research studies. In addition, given the current COVID-19 pandemic, G2MH is also hoping to learn about how families are coping during this difficult time. We therefore invite you to share the following short anonymous survey with your patients:

https://redcap.chop.edu/surveys/?s=NK7DMDX3CM

Many thanks in advance.

Source: www.22qsociety.org/knowledge/covid-19_info

The 22q11.2 Society Registered Charity No. 1165896