The 22q11.2 Society

Promoting research, diagnosis, prognosis, and management of 22q11.2DS & related disorders

Family Corner

This section contains information for families of patients with 22q11.2DS.

The information is provided for educational purposes only. They are not intended to be taken as medical advice. If you have questions or concerns, please discuss them with your doctor or healthcare provider.

Medical Guidelines and Reviews



Family Activities

22q at the Zoo (Annual event)

The 10th Annual 22q at the Zoo Worldwide Awareness Day is cancelled in 2020 due to COVID-19 concerns. Nevertheless, the International 22q Foundation invites everyone to participate in a virtual event entitled:

Life is a Zoo But the International 22q Foundation is Still Here for You!

It is easy to join! For more information, please visit the event website.

Light for 22q (Luces por el 22q)

With the motto of "Raise Awareness, Make 22q Visible", families and professionals joined the initiative to light up emblematic buildings or monuments in Spain. Please visit to see the photos from 2018.


The 22q11.2 Society Registered Charity No. 1165896