Trustees
Donna McDonald-McGinn (Chair)
Donna McDonald-McGinnProf. Donna McDonald-McGinn is Director of the 22q and You Center, Chief of the Section of Genetic Counseling, and Associate Director of the Clinical Genetics Center at the Children's Hospital of Philadelphia and Clinical Professor of Pediatrics at the Perelman School of Medicine of the University of Pennsylvania.
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Anne Bassett (Treasurer)
Anne BassettDr. Anne Bassett holds the Dalglish Family Chair in 22q11.2 Deletion Syndrome (22q11.2DS) and is the Director of the Dalglish Family 22q Clinic at Toronto General Hospital, Toronto, Ontario, Canada.
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Pete Scambler (Vice-Treasurer)
Peter ScamblerProfessor Peter Scambler is a Professor of Molecular Medicine in the United Kingdom. His research efforts have concentrated upon congenital cardiovascular defects seen in 22q11.2 deletion and CHARGE syndromes, with collaborations investigating other organ systems.
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Ann Swillen (Secretary)
Ann SwillenTrained as educational psychologist at the Faculty of Psychology and Educational Sciences at the University of Leuven, Professor Swillen joined the multidisciplinary team of the Center for Human Genetics at the University Hospital Gasthuisberg Leuven in 1990.
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Erik Boot (Trustee)
Erik BootDr. Erik Boot is a physician specialized in intellectual disability medicine and works at the multidisciplinary 22q11.2 clinics for adults at 's Heeren Loo and Maastricht in the Netherlands.
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Bernice Morrow (Trustee)
Bernice MorrowBernice E. Morrow, Ph.D., is a professor in the Departments of Genetics, Obstetrics & Gynecology and Women's Health, and Pediatrics at the Albert Einstein College of Medicine in New York. She is also the Sidney L. and Miriam K. Olson Chair in Cardiology as well as the Director of the Division of Translational Genetics at the Department of Genetics at Einstein.
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Beata Nowakowska (Trustee)
Beata NowakowskaBeata Nowakowska is Associate Professor and Head of the Laboratory of Cytogenetics at the Department of Medical Genetics at the Institute of Mother and Child in Warsaw. Since 2010, her research is focused on the phenotypic variability of patients with 22q11 Deletion Syndrome.
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Sólveig Óskarsdóttir (Trustee)
Sólveig ÓskarsdóttirDr. Sólveig Óskarsdóttir is a specialist in pediatrics and immunology. She has been following children and adolescents with the 22q11 deletion syndrome for nearly 30 years and is the leader of the 22q11-expert team at Sahlgrenska University Hospital in Gothenburg, Sweden.
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