Responses to the Washington Post regarding an inaccurate article about 22q

The 22q11.2 community is responding to perceived inaccuracies and unsubstantiated medical recommendations in a Washington Post article of May 1st, 2021. The article in question is "Doctors said the boy was suffering from teenage psychosis. What he really had was a rare genetic condition.".

The genetic condition the article refers to is 22q11.2 deletion syndrome. Here are some of the letters that 22q experts have written to the Washington Post.

22q Society's Response to the Washington Post

IBBC's Response to the Washington Post

International 22q11.2 Foundation's Response to the Washington Post

22q11.2 Society Advisor, Dr. Emily Gallagher, also submitted a letter to the Editor advising caution for the use of the investigative drug discussed in the article. Further, she went on to encourage any families who are considering taking medications for the treatment of 22q11.2 Deletion Syndrome to reach out to a specialized multidisciplinary team to discuss their options so they can make an informed and safe decision. This letter was released by the Washington Post on May 12th, 2021.